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Rank: Newbie  Groups: Registered
Joined: 1/23/2012 Posts: 7
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Does it exist with RA?????????????! Or is it just me????  RA diagnosed in June 2011.
Previous history of Wegeners Granulomatosis since 1995.
Current meds: Mycophenalate 2000mg daily, Prednisalone 40mg, - waiting to start ANTI TNF.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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No it is not just you. My Husband and I have not done the deed for a long time now. Mind you there would need to be a crane involved if we did attempt it, so too much faf.
Seriously I think you will find lots of my fellow RA sufferers will also say that sex drive can be affected.
Jackie
xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Not sure if it's the sex drive or the energy drive but either way you are not on your own. It's easier to settle for a cup of tea and a cuddle!  Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009
Posts: 176
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It must exsit for some, as there are pregnant women on here!
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Rank: Advanced Member
Groups: Registered
Joined: 12/8/2009
Posts: 43
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It does exist
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Rank: Advanced Member
Groups: Registered
Joined: 11/9/2010
Posts: 73
Location: Surrey
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My husband says I can't drive the car let alone...!!!???!!!...well, that's another story (ahem!)
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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yep its there but it takes 2 to tango,my thoughts are that the other half may be scared to cause a bit of discomfort,make time to talk,it does wonders to air concerns always worked for me and late hubby as he was not pain free himself,where theres a will theres a way and cuddles are always nice,all the best,dorothy
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Rank: Member
Groups: Registered
Joined: 4/21/2012
Posts: 23
Location: Nottingham
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Know this conversation ended in Feb, but Im new to site so excuse my new addition to this post...
I was diagnosed in Feb so RA is still new to me and Im still coming to terms with all the different areas of my life that RA appears to affect. I live on my own with my daughter but have been "dating" my boyfriend for the past 3+ years. We only get to see each other at weekends so this is an important part of cementing our relationship - however, with the fatigue, pain and last weekends sickness (reaction to Tramadol) we appear to be drifting a little. He is not one for talking about his emotions which makes things far harder....
However, I pushed for "the talk" and he confirmed his side - he is scared of hurting me when he knows im not honest about how much pain I am in, specially as it often hurts just to hold my hand.... we have agreed to try and be more honest about how we feel, and agreed to take it one day at a time - yet one more hurdle RA has made me try to jump.
Holiday due in 2 weeks tho - so with painkillers already packed, warm sunshine guaranteed - who knows what could happen ;-)
Tina
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Tina Wishing you a wonderful holiday, I m sure being relaxed and in sunny climes will do you both the world of good  Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Also hoping you have a great and relaxing holiday, Tina. Will someone please explain to me what this S E X thing is 
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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just thinking the same thing myself Jean? I vaguely remember something.................  YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Not something you two should be getting up to at your age 
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Rank: Advanced Member Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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wot age is that then you 2,if the body is willing.......grab the painkillers and pray,is it all in the mind??????age yeh sorry forgot what we are talking about for a min,sex oh i remember now,wots that again hope you have a good break tina and it sounds as if this fella just needs to be reassured you are still lovable just in a gentle way,my hubby was a very butch man but when i got into his softer side he was just as worried as me and that does not help,women are known to chat about anything but blokes just dont god knows why not,men eh! if only... get him talking,good luck and dont give up,dorothy
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Rank: Member
Groups: Registered
Joined: 4/21/2012
Posts: 23
Location: Nottingham
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lmao..... what else can I do to the lovely replies :-)
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Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
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Wow!!! Just watched a Daniel Craig "James Bond" dvd.........clearly he doesn't have ra!!!  No, I'm not able to copy his groovy moves! Just saying! Xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Cosmic wrote:Does it exist with RA?????????????! Or is it just me???? For me, R.A. began and my sex drive upped and left me. (But my partner stuck by me!) We only met 11 months before the illness started. I don't know whether age has anything to do with it, I was 37 or 38 when I developed R.A. I love my partner very much and we have been seeing each other for nearly 19 years. I remember reading that your sex drive increases for women in their 40's and 50's but it certainly hasn't for me. If you think about it, for someone of my age, 55, it hardly makes biological sense anyway! At least I have a lovely Grand daughter! No doubt other people will have had different experiences of R.A and sex drive. I can only relate my own experience of it. Warm wishes, Fiona
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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I vaguely remember that word!! To be honest, my husband was ill before me, so sadly sex stopped before my diagnosis Hope your holiday goes really well and that you enjoy the romance!!! BARBARA
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Rank: Member  Groups: Registered
Joined: 11/22/2012 Posts: 11 Location: nr Manchester
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"sex drive"? Think mine went into reverse and sped off like a bull in a china shop!  I'm 28 and whilst I can hear the "tick tick" in my head for a child...my body laughs at my brain and asks if it's considered the chance of an immaculate conception! "You can't live without the fire
It's the heat that makes you strong
'Cause you're born to live
And fight it all the way" Within Temptation ~ 'Iron'
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Rank: Advanced Member  Groups: Registered
Joined: 5/28/2012 Posts: 665 Location: Newton Abbot
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Hi Tang - love your sense of humour! Don't give up hope - all things are possible. Once your RA, etc are controlled you'll be able to resume normal life - there's quite a few ladies who visit here who have had babies since getting RA - but not surprisingly they're a bit too busy to drop in every day. But honestly, most people do respond well to the right meds and if there's not too much joint damage then life is just as much fun as it was pre-RA (sex life included  ) Sylvia xx Be kinder than is necessary because everyone you meet is fighting some kind of battle
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Rank: Advanced Member  Groups: Registered
Joined: 2/7/2013 Posts: 71 Location: Suffolk.
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When I'm flaring I don't have the energy to so much as brush my hair, let alone get frisky. The rest of the time though I'm good to go I think the key for us has been finding ways that we can make its work for us. The experiments along the way were fun, either because they were a success or so hilarious. I can't count how many times I have got stuck
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